LGBTQ+ youth are reaching out for help
In partnership with Vicky Rideout and I, Common Sense Media created fact sheets about multiple groups included in our national study (Latinx, Black, female, LGBTQ+ youth, to name a few) and I thought...
View ArticleDepression, social media use, and digital health
In partnership with Vicky Rideout and I, Common Sense Media created fact sheets based on our national study and I thought I’d share slices of data in a series of posts. The complete survey findings,...
View ArticleCoping with COVID-19
I am thrilled to share that my research partners and I will release a new survey report on March 17: Coping with COVID-19: How Young People Use Digital Media to Manage Their Mental Health. In 2018,...
View ArticleLongCovid’s citizen scientists
Amy Dockser Marcus writes with the sensitivity and precision of a scientist, which is why I was thrilled that she recently turned her attention to the patient-led research being conducted by people...
View ArticleConnecting during COVID-19
My friend and community colleague Margie Morris wrote a wonderful article for a clinical neuroscience journal that, with her permission, I am excerpting for a series of posts. My goal is to spark...
View ArticleWhy entrepreneurs should listen to patients & caregivers
I am thrilled to share this excerpt from the Harvard Business Review article I wrote, “How Chronic-Disease Patients Are Innovating Together Online”: The internet gives us virtually unlimited access to...
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Mystery solved. Again.
Friends, I have yet another so-extraordinary-it’s-ordinary story of peer-to-peer health care to share. Andrew Wilkinson wrote on Twitter: A few months ago, as a last ditch effort, I posted on Twitter...
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We need a digital health Cajun Navy
The Cajun Navy – people who rally their personal boats to rescue hurricane survivors – is an example of how ordinary citizens are the true first responders in a disaster zone. Instead of seeing locals...
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Medicine’s cultural “caution tape”
I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Jack Penner, in response to “His doctors were stumped. Then he took over”...
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Parkinson’s For One Day
My new job is wonderfully immersive. I leave home early, come back late, and, in between, spend hours talking with people about the future of health, health care, and technology (broadly defined). The...
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Snow day
I’m taking advantage of the “snow day” to share what I have been reading, watching, listening to, thinking about — and I invite you to join me, even if you don’t have a snow day. (Truth be told, DC...
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Weekend update
Last Saturday I posted a round-up of what caught my eye during the week and my friend Andre Blackman (@mindofandre) created this awesome graphic: Thus encouraged, here’s another round of what I...
View ArticleHelping people find the needle in a data haystack
One of the most important customer-service lessons I ever learned was from E-patient Dave: when it comes to disseminating research, give people what they need, not what you want to create. About a...
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Get Social Health
Janet Kennedy recently hosted me on the Get Social Health podcast, which focuses on how social media is being used to help hospitals, clinicians, caregivers, and patients connect and engage. We discuss...
View ArticleThe business case for paying attention to teens
Three blockbuster reports focused on teens and technology have come out recently: Teens, Social Media & Technology 2018, by Monica Anderson and Jingjing Jiang (Pew Research Center) Digital Health...
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Teens and young adults: In their own words
The Hopelab/Well Being Trust report is based on a nationally-representative online survey which we designed to have as many open-end questions as we could squeeze into it. We were overwhelmed (in a...
View ArticleDigital health practices among teens and young adults in the U.S.
I am thrilled to share new, national survey data on the digital health landscape. Thanks to funding and guidance from Hopelab and the Well Being Trust, Vicky Rideout and I measured how teens and young...
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Clinical trials jump on the Cluetrain
When the organizers of a National Cancer Institute workshop on social media and clinical trials invited me to speak, they said: We have an ethical obligation to understand social media. Social media is...
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Medicine’s cultural “caution tape”
I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Jack Penner, in response to “His doctors were stumped. Then he took over”...
View ArticleClik here to view.
Parkinson’s For One Day
My new job is wonderfully immersive. I leave home early, come back late, and, in between, spend hours talking with people about the future of health, health care, and technology (broadly defined). The...
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